Resource Guide for Myelodysplastic Syndrome (MDS)
by Cynthia M. Johnson, MA
American Cancer Society
National Home Office
250 William Street NW
Atlanta, GA 30303
The American Cancer Society provides educational information about all types of cancer, and news and research resources for patients, their families, and caregivers. Live chat via Internet is available to get information and support. The site also provides access to clinical trial information and treatment centers. Volunteer, donation, and fundraising information are also available.
National Cancer Institute TOP
BG 9609 MSC 9760
9609 Medical Center Drive
Bethesda, MD 20892-9760
The National Cancer Institute provides information on clinical trials, statistics, research programs, research funding, and many other matters relating to cancer, including MDS. The organization also provides a service called LiveHelp where you can chat with an information specialist directly from the website.
The MDS Foundation TOP
4573 South Broad Street
Yardville, NJ 08620
1-800-MDS-0839 (inside US)
609-298-1035 (outside US)
Created to "provide an ongoing exchange of information related to MDS," the Foundation offers news, including upcoming legislation, recommended medical centers for treatment, research results, and a listing of links to related websites. You can also find a patient handbook and other articles.
American Society of Hematology TOP
2021 L Street NW
Washington, DC 20036
The mission of the American Society of Hematology (ASH) is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic, hemostatic, and vascular systems. The organization accomplishes this mission by promoting research, clinical care, education, training, and advocacy in hematology.
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