Description of services provided:
The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

AXYS

Address:
PO Box 861
Mendenhall, PA 19357

Phone:
1-888-999-9428

Internet address:
http://www.genetic.org

Description of services provided:
This website provides support services, a newsletter, and information about sex chromosome variations.

March of Dimes

Address:
1275 Mamaroneck Avenue
White Plains, NY 10605

Internet address:
http://www.marchofdimes.org

Description of services provided:
The March of Dimes provides information on pregnancy and birth defects and gives referrals.

National Down Syndrome Society

Address:
8 East 41st Street, 8th floor
New York NY, 10017

Phone:
1-800-221-4602

Internet address:
http://www.ndss.org

Description of services provided:
The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

National Society of Genetic Counselors

Address:
330 North Wabash Avenue, Suite 2000
Chicago, IL 60611

Phone:
1-312-321-6834

Internet address:
http://www.nsgc.org

Description of services provided:
On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

Support Organization for Trisomy

Address:
2982 South Union St.
Rochester NY, 14624

Phone:
1-800-716-7638

Internet address:
http://www.trisomy.org

Description of services provided:
This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

Turner Syndrome Society

Address:
11250 West Road, Suite G
Houston TX, 77065

Phone:
1-800-365-9944

Internet address:
http://www.turnersyndrome.org

Description of services provided:
The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

Five P Minus Society (Cat Cry Syndrome)

Address:
P.O. Box 268
Lakewood CA, 90714

Phone:
1-888-970-0777

Internet address:
http://www.fivepminus.org

Description of services provided:
This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.

Last reviewed November 2018 by EBSCO Medical Review BoardMichael Woods, MD, FAAP
Last Updated: 11/6/2018

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