Resource Guide for Chromosomal Abnormalities

• Address:

  4301 Connecticut Avenue, NW, Suite 404

  Washington, DC 20008

• Phone:

  1-202-966-5557

• Internet address:

  http://www.geneticalliance.org

• Description of services provided:

  The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

AXYS

• Address:

  PO Box 861

  Mendenhall, PA 19357

• Phone:

  1-888-999-9428

• Internet address:

  http://www.genetic.org

• Description of services provided:

  This website provides support services, a newsletter, and information about sex chromosome variations.

March of Dimes

• Address:

  1275 Mamaroneck Avenue

  White Plains, NY 10605

• Internet address:

  http://www.marchofdimes.org

• Description of services provided:

  The March of Dimes provides information on pregnancy and birth defects and gives referrals.

National Down Syndrome Society

• Address:

  8 East 41st Street, 8th floor

  New York NY, 10017

• Phone:

  1-800-221-4602

• Internet address:

  http://www.ndss.org

• Description of services provided:

  The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

National Society of Genetic Counselors

• Address:

  330 North Wabash Avenue, Suite 2000

  Chicago, IL 60611

• Phone:

  1-312-321-6834

• Internet address:

  http://www.nsgc.org

• Description of services provided:

  On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

Support Organization for Trisomy

• Address:

  2982 South Union St.

  Rochester NY, 14624

• Phone:

  1-800-716-7638

• Internet address:

  http://www.trisomy.org

• Description of services provided:

  This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

Turner Syndrome Society

• Address:

  11250 West Road, Suite G

  Houston TX, 77065

• Phone:

  1-800-365-9944

• Internet address:

  http://www.turnersyndrome.org

• Description of services provided:

  The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

Five P Minus Society (Cat Cry Syndrome)

• Address:

  P.O. Box 268

  Lakewood CA, 90714

• Phone:

  1-888-970-0777

• Internet address:

  http://www.fivepminus.org

• Description of services provided:

  This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.