Talking to Your Doctor About Sickle Cell Disease
You have your own health history. Talk with your doctor about your risk factors and background with sickle cell disease. By talking openly and often with your doctor, you can take an active role in your care.
Tips for Getting Information
Here are some tips that will make it easier for you to talk to your doctor:
- Bring someone else with you. It helps to have another person hear what is said and think of questions to ask.
- Write down your questions so do you do not forget them.
- Write down the answers you get. Make sure you understand what you are hearing.
- Ask for help if you need it. Do not be afraid to ask questions or ask where you can find more information. You have a right to know.
- Getting the most out of your doctor appointment. Family Doctor—American Academy of Family Physicians website. Available at: https://familydoctor.org/tips-for-talking-to-your-doctor.
- Pinto VM, Balocco M, et al. Sickle cell disease: a review for the internist. Intern Emerg Med. 2019;14(7):1051-1064.
- Sickle cell disease. Centers for Disease Control and Prevention website. Available at: https://www.cdc.gov/ncbddd/sicklecell/index.html.
- Sickle cell disease. Kids Health—Nemours Foundation website. Available at: http://kidshealth.org/en/parents/sickle-cell-anemia.html.
- Sickle cell disease in adults and adolescents. EBSCO DynaMed website. Available at: https://www.dynamed.com/condition/sickle-cell-disease-in-adults-and-adolescents.
- Sickle cell disease in infants and children. EBSCO DynaMed website. Available at: https://www.dynamed.com/condition/sickle-cell-disease-in-infants-and-children
- What is sickle cell disease? National Heart, Lung, and Blood Institute website. Available at: https://www.nhlbi.nih.gov/health/sickle-cell-disease.
- Kari Kassir, MD
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