Colostomy / Ileostomy—Child
Procedure
Definition
An ostomy is a procedure that connects an internal organ to the surface of the body. An opening called a stoma is made to let waste exit the body and pass into an external bag.
The 2 types of ostomies discussed here include:
- Colostomy—brings the large intestine to the wall of the belly
- Ileostomy—brings the small intestine to the wall of the belly
Ostomies can be used for a short or long amount of time. For infants and children they are often used for just a short time.
Reasons for Procedure
The intestines make a path for food to be digested and passed out of the body. An ileostomy or colostomy may be needed if the path through the intestines is interrupted. The interruption may be due to injury or illness of the intestine such as:
- Health issues a child was born with, such as spina bifida, Hirschsprung disease, and an imperforate anus
- Inflammatory bowel disease
- Trauma to the colon or rectum
- Cancer
- Serious infection
- Intestinal or bowel blockage that cannot be fixed with other ways
A short term ostomy may be done to let the intestine rest after surgery, trauma, or illness.
A permanent ostomy may be needed if:
- A large area of intestine is removed
- The remaining lower intestine or rectum cannot be repaired
Possible Complications
Problems are rare, but all procedures have some risk. Your child’s doctor will go over problems that could happen, like:
- Bad reaction to anesthesia
- Nausea and vomiting
- Sore throat
- Skin irritation or scar tissue
- Infection
- Wound opening or excess bleeding
- Hernia at the incision site or the bowel presses out of the stoma
- Damage to nearby organs
- Heart attack or blood clots
- Nutrition problems such as low levels of vitamins
Talk to your child’s doctor about ways to manage things that may raise your child’s risk of problems.
What to Expect
Problems To Look Out For
Call the doctor if your child has:
- Nausea or vomiting that will not go away
- Signs of infection, such as fever or chills
- Lightheadedness
- Skin irritation
- Change in stool texture, black, tarry stools, or blood in stool
- Not passing any stool
- Severe belly pain or cramps
- Change in how your child’s stoma looks, including narrowing or changes in color
- Bleeding from the stoma opening or in the pouch
- Blocked or bulging stoma
- New or unexpected symptoms
If you think your child has an emergency, call for medical help right away.
Prior to Procedure
Your child's surgical team may meet with you to discuss:
- Anesthesia options
- Any allergies your child may have
- Current medicines, herbs, and supplements that your child takes and whether they need to stop taking them before surgery
- Fasting before surgery, such as avoiding food or drink after midnight the night before
- Specialists your child may need to see
- Tests that will need to be done before surgery
National Institute of Diabetes and Digestive and Kidney Diseases
United Ostomy Associations of America
CANADIAN RESOURCES:
Health Canada
International Ostomy Association
National Institute of Diabetes and Digestive and Kidney Diseases
United Ostomy Associations of America
CANADIAN RESOURCES:
Health Canada
International Ostomy Association
References
- Colorectal surgery considerations. EBSCO DynaMed website. Available at: https://www.dynamed.com/procedure/colorectal-surgery-considerations.
- Colostomy. Johns Hopkins Medicine website. Available at: https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/colostomy.
- For parents of children with ostomies. American Cancer Society website. Available at: https://www.cancer.org/treatment/treatments-and-side-effects/treatment-types/surgery/ostomies/stomas-or-ostomies/for-parents.html.
- Ostomy surgery of the bowel. National Institute of Diabetes and Digestive and Kidney Diseases website. Available at: https://www.niddk.nih.gov/health-information/digestive-diseases/ostomy-surgery-bowel.
- Stoma care for children and their families. UCSF Benioff Children’s Hospital website. Available at: https://www.ucsfbenioffchildrens.org/education/stoma-care-for-children-and-their-families.
- What is a colostomy or ileostomy? American College of Surgeons website. Available at: https://www.facs.org/media/lyag0tu2/your_colostomy_ileostomy.pdf.
Contributors
- Chelsea Skucek, MSN, BS, RNC-NIC
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